Why We Run

Neurofibromatosis (NF2-related schwannomatosis) is deeply personal to our family.

Our team is running in honor of Pete and Amelia Nobis, two local individuals living with NF2.

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  Pete was diagnosed in 2008 after Gamma Knife radiosurgery to treat tumors caused by a spontaneous mutation. With no family history and mild symptoms at the time, NF2 was something we never expected would define our lives.
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  Amelia was diagnosed at just four years old after a “lazy eye” led to the discovery of a golf-ball-sized brain tumor requiring emergency surgery. Now 14, Amelia has endured six major surgeries, three malignant brain tumors, radiation, and multiple rare tumors, including relearning how to walk after surgery. She continues to travel regularly to Boston for specialized care and is on chemotherapy medicine at home for life. 

There is no cure for NF2. Research funding is critical. All funds raised go directly to NF Northeast, supporting NF2 research and patient programs.

Learn more about NF Northeast: https://www.nfnortheast.org/   

IMPORTANT! BE SURE TO NOTE "NF Northeast" IN THE NOTE FIELD ALONG WITH THE NAME OF THE STUDENT/PERSON SO WE KNOW WHAT ORGANIZATION YOU ARE SUPPORTING.